Registry Working Party
Informed Patient Consent
Before entering patient data into the ESID Database you have to obtain an informed patient consent. Patient consent forms containing information on the database are available here in many languages.
Informed patient consent with prefix GDPR and date are versions in accordance with the regulations set forth by the GDPR.
For all the others, please see version and date of each form by selecting the files. These are outdated and only listed here for your reference. Please use only GDPR compliant versions to get the patients' consent.
GDPR compliant PIC language versions:
Please find here the procedures to handle the supplement to data protection:
Please find here a list of available language versions of the supplement to data protection:
Spanish and Catalan versions provided by Pediatric Infectious Diseases and Immunodeficiencies Unit (UPIIP):
Romanian version will be provided soon
Portuguese Version will be provided soon
These PIC documents are currently under review/ being translated:
Last update: 2019-07-15