Registry Working Party

Informed Patient Consent

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Before entering patient data into the ESID Database you have to obtain an informed patient consent. Patient consent forms containing information on the database are available here in many languages.

Informed patient consent with prefix GDPR and date are versions in accordance with the regulations set forth by the GDPR

For all the others, please see version and date of each form by selecting the files. These are outdated and only listed here for your reference. Please use only GDPR compliant versions to get the patients' consent.

GDPR compliant PIC language versions

Armenian (EC Freiburg, Version 3.01, 28.10.2019, translated from German Version 3.01)

English version  (EC Freiburg, Version 3.02, 24.09.2019, revised version translated from German Version 3.01)

Catalan version in preparation (provided by Xavier Solanich Moreno).

French (EC Freiburg, Version 3.01, 24.07.2019, translated from German Version 3.01)

German (Freiburg: Version 3.01, 03 June 2019)

Czech version in preparation.

German (Giessen: Version 3.00, 21 May 2019)

Dutch version in preparation (provided by Filomeen Haerynck). 

Greek version  (by Sofia Tantou, EC Freiburg, Version 3.01, 08.10.2019, translated from German Version 3.01)

Hebrew version (EC Freiburg, Version 3.01, 12.09.2019, translated from German Version 3.01)

Russian version (EC Freiburg, Version 3.01, 24.08.2019, translated from German Version 3.01)

Ukrainian version (EC Freiburg, Version 3.01, 25.10.2019, translated from German Version 3.01)

Spanish version in preparation (provided by Xavier Solanich Moreno).

Slovak version in preparation.

 

How to handle the supplement to data protection

Please find here the procedures to handle the supplement to data protection.

English

German

LAnguage versions of the supplement to data protection

Please find here a list of available language versions of the "Supplement to data protection".

English

German

Italian

Spanish and Catalan versions provided by Pediatric Infectious Diseases and Immunodeficiencies Unit (UPIIP):

Dutch

Russian

Romanian version will be provided soon.

Portuguese version will be provided soon.

 

   

Obsolete PIC versions (obsolete consents, may be used as reference or for information purpose)

 
application/msword

Croatian Patient Consent

Msword, 34.50 kB
application/msword

Lithuanian Patient Consent

Msword, 33.50 kB
application/msword

Romanian Patient Consent

Msword, 32.50 kB
application/msword

Slovak Patient Consent

Msword, 34.00 kB

Last update: 2019-11-06