Registry Working Party
In 2018, the ESID Registry WP renews its call to support national registries and individual documenting centres in your invaluable work associated with the documentation within the ESID Registry.
Stipends of up to 5,000 Euro for 1 year only will be provided on a competitive basis for projects dedicated to this issue.
Wishing you a nice summer.
Best regards to all,
This call is now CLOSED!
Applications are currently evaluated and the funded projects will be informed in due time.
New centers should fill in the Agreement between the center and ESID
and new users of the ESID registry the password application.
This list gives an overview on the diseases in the Registry and available genes for each disease.
This section provides questionnaires that can be applied to patients and physicians to collect the necessary data items for the new ESID Registry.
The questionnaires correspond to the level 1 of the new ESID Registry.
For explanation of the different fields of the questionnaire, please check the corresponding datasets.
Questionnaires for level 2 ( unPAD study) are preliminary for the time being and only in English available. Please refer to the dataset, too.
A summary explaining the development and design of the new ESID Registry