Registry Working Party

ESID Database Statistics

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Last update of this page: June 19, 2018

Registered in the ESID database by

ESID documenting centers (incl. national centers)

As of June 19, 2018:

About 70% of the active centres have no datasets left to verify (that have been imported from the old ESID Registry), i.e. the verification process is completed in those documenting centres.

Another 10 % of the active centres have only datasets from less than 10 patients left to verify.

Lithuania is the first country that has completed the verification process of imported data, followed by Croatia, Germany, UK, Slovenia, and Slovakia.

Reporting tool:

We are working on a new interactive reporting tool which will allow you to get access to your own centres' data as well as aggregated figures from your country and the overall ESID registry.

This reporting tool will be launched in 2nd quarter 2018.

The New Registry currently holds data on

24,649 patients

(of which 4372 have not yet been verified) from

181 Centres!

Please note : The following figure shows the final numbers from the old ESID Registry (2004-2014) which was closed for documentation on June 25, 2014. 

Documented prevalence of PID in Europe

Living patients (n) per 100,000 inhibitants (Move mouse over map for more details (Country, number of living patients, prevalence)

Color legend

n = 0
0 < n < 0.5
0.5 ≤ n < 1
1 ≤ n < 2
2 ≤ n < 3
3 ≤ n < 4
4 ≤ n < 5
n ≥ 5

Note (1): The map shows the minimal prevalence rates calculated from the number of documented PID patients in the ESID Database.
Note (2): There are patients who are treated outside their country of residence. This means that e.g. a patient is registered by a hospital in Switzerland though he lives in Austria.

Major Immunodeficiency Groups

June 25, 2014
The classification of diseases in the Database was revised in February 2011. This included e.g. adding the category "Defects in innate immunity". The pre-2011 numbers are still based on the old classification.
Diagnosis

Number of patients per documenting center

June 25, 2014
Ranking of all documenting centers regarding their absolute number of patients.

Historic additional statistics

as of June 25, 2014

2018-06-19 11_48_46-ESID - European Society for Immunodeficiencies

Additional statistics:
**Alive patients with no information on therapy are excluded from this evaluation.
Age groups:

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