Registry Working Party

Old Registry Stats

Please refer to the Reporting website for current statistics!

Please note that the figures in this section show the final numbers from the old ESID Registry (2004-2014) which was closed for documentation on June 25, 2014. 

Documented prevalence of PID in Europe

Living patients (n) per 100,000 inhibitants (Move mouse over map for more details (Country, number of living patients, prevalence)

Color legend

n = 0
0 < n < 0.5
0.5 ≤ n < 1
1 ≤ n < 2
2 ≤ n < 3
3 ≤ n < 4
4 ≤ n < 5
n ≥ 5

Note (1): The map shows the minimal prevalence rates calculated from the number of documented PID patients in the ESID Database.
Note (2): There are patients who are treated outside their country of residence. This means that e.g. a patient is registered by a hospital in Switzerland though he lives in Austria.

Major Immunodeficiency Groups

June 25, 2014
The classification of diseases in the Database was revised in February 2011. This included e.g. adding the category "Defects in innate immunity". The pre-2011 numbers are still based on the old classification.

Number of patients per documenting center

June 25, 2014
Ranking of all documenting centers regarding their absolute number of patients.

Historic additional statistics

as of June 25, 2014

2018-06-19 11_48_46-ESID - European Society for Immunodeficiencies

Additional statistics:
**Alive patients with no information on therapy are excluded from this evaluation.
Age groups:

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