Centres that have fully registered eligible patients in the ESID-registry, have already been contacted directly and asked for approval to use the documented data.
Data has been extracted from ESID-R and provided to the study team. Analysis pending (01/2024).
On behalf of the ESID registry working party steering committee, we would like to understand how many active registries for inborn errors of immunity (IEI) for patient data entry exist.
Pulmonary diseases significantly impact patients with Inborn Errors of immunity (IEI), yet detailed knowledge and current treatment regimens remain limited.
Prof. Markus G. Seidel
ESID registry Working Party invited all ESID registry participants to take part in the “Malignancies in IEI” study L1 documentation.
Level 2 survey (via REDCap forms) is now
CLOSED
Upcoming Immunology Haematology CWP Symposium 2025
Date: May 13th, 2024. 17:00 to 18:26 pm
Participants: Roger, Adela, Gigliola, Kimberly, Mike, Sandra, Lenovo, Tom, Kim, Capucine, Michele, Klaus, Mirjam, Despina, Caterina, Marielle, Tim, Trine, Isabelle, Giada, Guilaine, Anne, Cristina, Andrés, Bodo
Date: March 21st, 2024. 17:00 to 17:36 pm
Participants: Kimberly, Mikko, Trine, Roger, Elisa, Cristina, Guilaine, Andrés, Janna, Capucine, Adela, Kim, Christophe, Gigliola, Juan, Bodo.
Date: February 2nd, 2024. 16:00 to 17:18 pm
Participants: Kimberly, Karin, Gigliola, Juan, Jacques, Lennart, Tom, Roger, Guilaine, Andrés, Laura, Federica, Kaan, Helen, Janire, Marco, Natalja, Christophe, Joris, Janna, Isabelle, Capucine, Elisa, Julie, Bodo.
Date: November 20th, 2023. 17:00 to 18:05 pm
Participants: Klaus, Michele, Lennart, Janna, Kimberly, Roger, Trine, Mike, Capucine, Adela, Andrés, Clara, Elisa, Natalja, Christophe, Jjaroste, Emanuele, Liz, Guilaine, Sophie, Gabriella, Bodo
