Pulmonary diseases significantly impact patients with Inborn Errors of immunity (IEI), yet detailed knowledge and current treatment regimens remain limited.
Therefore, we deeply appreciate your valuable contributions and invite you to participate in the study “Spectrum of P ulmonary Manifestations in Patients with inborn Errors of immunity (IEI) – an ESID Registry Study”.
Thedeadline for this survey, aiming to result in a collaborative publication, is July 21.
We are planning to include the contribution of your completed survey in the pubmed-searchable group-collaborator list at the end of the article.
Your participation involves answering 10 mandatory questions along with optional extended questions.
You can stop and resume the survey entry for each patient at any time by following the instructions provided in the link above. Once you have finalized your entries, please make sure to press “Submit” as the data will not be transferred otherwise. Please feel free to contact johanna.krista@tum.de with any questions regarding the survey.
School of Medicine and Health, TUM; together with Ellen D Renner, Gerhard Kindle, Klaus Warnatz.
Study: https://stuz-redcap.ukl.uni-freiburg.de/surveys/?s=F9W8PWYPAKMK3XWJ
