On behalf of the ESID registry working party steering committee, we would like to understand how many active registries for inborn errors of immunity (IEI) for patient data entry exist.
This shall become part of a manuscript and give an overview of the global registry landscape and of possibilities for further collaborations with the ESID registry (ESID-R).
We would be grateful, if you could take 3-5 minutes to answer our survey about your national, international and regional registry involvement (if existent). We are planning to include the contribution of your completed survey in the pubmed-searchable group-collaborator list at the end of the article.
We thank you for your time and contribution! Catharina Schuetz, Michael Albert, Svetlana Sharapova.
Survey: https://bildungsportal.sachsen.de/umfragen/limesurvey/index.php/847313?lang=en
