Registry Working Party
Datasets and driving questions
This section contains technical documents on the new ESID Registry; in particular, the complete Level 1 dataset with field definitions and driving questions as well as the Level 2 dataset ( unPAD study).
Slides and flow charts describing the documentation process in the new ESID system
Oct 18, 2013
Flow chart describing the process of data transfer to the new ESID system, and validation of entries
April 30, 2013
Level 1 Datasets
These are the datasets for level 1 documentation which is mandatory for all patients. Corresponding questionnaires are provided that can be applied to patients and physicians to collect the necessary data items for the new ESID Registry.
Updated versions, Sep 22, 2014
Level 1 Driving Questions
These are the driving research questions underlying these datasets:
Level 2 Datasets
These are the datasets for level 2 documentation which is optional.
Currently the dataset for the UnPAD Study is available.
Updated version, Okt 28, 2016
Please refer to the registry studies section for further information on the unPAD study.
More level 2 datasets are in preparation and will be made available here as soon as possible.