COPID19. Worldwide survey of COVID-19 in PID patients
With the emergence of SARS-CoV-2 and the COVID-19 pandemic, there is an urgent need to understand the impact of infection on immunodeficient individuals.
Whilst co-morbidities (such as diabetes, cancer, arterial hypertension, heart disease...) have been documented in people infected with SARS-CoV-2, there is currently no information on the consequences and outcomes for individuals with primary immunodeficiencies (PID).
Following the 1st phase of the survey (launched by Isabelle Meyts (ESID), Nizar Mahlaoui (CEREDIH & IPOPI) and Kate Sullivan with Stuart Tangye (IUIS), that gave an idea of the number of affected PID patients and the impact of SARS-CoV-2 and directly focusing on obtaining this top level of information), we are launching the 2nd phase: "COPID19".
COPID19 survey (available here) is a secured online GDPR compliant platform based in Paris (Imagine Institute). It has been approved by the Paris-Necker-Enfants malades IRB and Ethics Committee. However, this retrospective survey is designed for global distribution. Data can be entered by a health care professional (mostly clinicians) through a personal login and password.
Each documenting person will have access to his/her own patients' data. COPID19 require a greater level of information than the 1st phase. The eCRF will be open to evolutions depending on progresses in our knowledge of this pandemic.
Of course, all participating societies and organizations will be acknowledged for their help and input into this initiative.
Thanks in advance for your invaluable contribution to this survey.
All the best,
The COPID19 team:
Nizar Mahlaoui (Paris-Necker, CEREDIH and IPOPI Chair of the IPOPI Medical Advisory Panel)
Fanny Lanternier (Paris-Necker and CEREDIH)
Isabelle Pellier (Angers and CEREDIH)
Alain Fischer (Paris-Necker, CEREDIH, Imagine Institute and Member of the IPOPI Medical Advisory Panel)
Benedicte Neven (Paris-Necker and Imagine Institute)
Jean-Laurent Casanova (Paris-Necker, Imagine Institute and Rockefeller University)
Klaus Warnatz (Freiburg-CCI and Member of the IPOPI Medical Advisory Panel)
Kate Sullivan (Philadelphia and IUIS)
Stu Tangye (Sydney, IUIS and Member of the IPOPI Medical Advisory Panel)
Isabelle Meyts (Leuven, ESID, IUIS and Member of the IPOPI Medical Advisory Panel)