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Covid-19

IPOPI – ESID Joint Statement: The use of monoclonal antibody treatment for patients with PID in the context of the COVID-19 pandemic

admin
17/09/2023

 IPOPI ESID Statement IPOPI – ESID Joint Statement The use of monoclonal antibody treatment for patients with PID in the context of the COVID-19 pandemic 11 November 2021 The role of monoclonal antibody (mAb or moAb) therapies in the treatment of COVID-19 in primary immunodeficiency (PID) patients is currently being discussed by the PID expert and patient community. Monoclonal antibodies have been used successfully to treat patients infected by SARS-CoV-2, including patients with PID, in specific circumstances. This joint statement outlines some key recommendations based on current clinical experience. Let us first bear in mind…  It is helpful to recall that the risk level for most patients with PID of developing severe symptoms of COVID[1]19 is comparable to that of the general population, with only a few very rare PIDs being effectively […]

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Covid-19

ESID COVID-19 Statement, March 2022

admin
17/09/2023

Since the start of the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) pandemic, there has been rapid progress with understanding disease, clinical phenotypes and biology, improving treatment and implementing vaccination trials. Data is accumulating about the impact of COVID-19 for patients with Inborn Errors of Immunity (IEI). The purpose of this statement is to summarise our state of knowledge and set out ESID’s current guidance for professionals in the IEI community in Europe. We will update this statement as evidence emerges.  Read the full statement here Last update: March, 2022.  What do we know about COVID-19 in IEI? There have been relatively few IEI patients reported with severe COVID-19 either in the literature or in the multiple studies carried out to date (Meyts et al JACI2021 Feb;147(2):520-53; Shields et al., J Allergy Clin Immunol. 2021 […]

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Clinical Working Party

ESID COVID-19 Statement, March 2022

admin
14/09/2023

Since the start of the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) pandemic, there has been rapid progress with understanding disease, clinical phenotypes and biology, improving treatment and implementing vaccination trials. Data is accumulating about the impact of COVID-19 for patients with Inborn Errors of Immunity (IEI). The purpose of this statement is to summarise our state of knowledge and set out ESID’s current guidance for professionals in the IEI community in Europe. We will update this statement as evidence emerges.

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Clinical Working Party

September 2023: Challenges of interpreting genetic reports for clinicians

admin
08/09/2023

September 2023: Challenges of interpreting genetic reports for clinicians Date: Monday, 18 September 2023, 16:00 CEST Please, click  here to view the webinar video. Topic: Challenges of interpreting genetic reports for clinicians Description: This session will be hosted by Professor Bodo Grimbacher who is with the Department for Immunodeficiencies at the University of Freiburg and is the current Chair of the ESID Genetics Working Party. During this session of the Grand Rounds, we will explore the topic of “Challenges of interpreting genetic reports for clinicians.” The schedule of presentations is as follows: An introductory talk by Andrés Caballero 5 min. and Adela Chirita-Emandi 5 min. on the basic nomenclature of human genetics and the importance of re-analyzing datasets regularly. Talk from Bodo Grimbacher: “The importance of careful phenotyping” 10 min. Talk from Roger Colobran: “Novel phenotypes of known […]

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Clinical Working Party

June 2023: Recent advances in HSCT for inborn errors of immunity – haploidentical transplantation

admin
06/06/2023

Date: Monday, 18 September 2023, 16:00 CEST Topic: Challenges of interpreting genetic reports for clinicians Description: This session will be hosted by Professor Bodo Grimbacher who is with the Department for Immunodeficiencies at the University of Freiburg and is the current Chair of the ESID Genetics Working Party. During this session of the Grand Rounds, we will explore the topic of “Challenges of interpreting genetic reports for clinicians.” The schedule of presentations is as follows:1. An introductory talk by Andrés Caballero 5 min. and Adela Chirita-Emandi 5 min. on the basic nomenclature of human genetics and the importance of re-analyzing datasets regularly.2. Talk from Bodo Grimbacher: “The importance of careful phenotyping” 10 min.3. Talk from Roger Colobran: “Novel phenotypes of known genes” 10 min.4. Talk from Guilaine Boursier: “The problem of NEMO and NCF1” 10 min.5. Talk from […]

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Clinical Working Party

May 2023: Where is gene therapy for PID?

admin
12/05/2023

Date: Monday, 18 September 2023, 16:00 CEST Topic: Challenges of interpreting genetic reports for clinicians Description: This session will be hosted by Professor Bodo Grimbacher who is with the Department for Immunodeficiencies at the University of Freiburg and is the current Chair of the ESID Genetics Working Party. During this session of the Grand Rounds, we will explore the topic of “Challenges of interpreting genetic reports for clinicians.” The schedule of presentations is as follows:1. An introductory talk by Andrés Caballero 5 min. and Adela Chirita-Emandi 5 min. on the basic nomenclature of human genetics and the importance of re-analyzing datasets regularly.2. Talk from Bodo Grimbacher: “The importance of careful phenotyping” 10 min.3. Talk from Roger Colobran: “Novel phenotypes of known genes” 10 min.4. Talk from Guilaine Boursier: “The problem of NEMO and NCF1” 10 min.5. Talk from […]

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Clinical Working Party

April 2023: Vaccination and inborn errors of immunity, update on clinical guidelines

admin
24/04/2023

Date: Monday, 18 September 2023, 16:00 CEST Topic: Challenges of interpreting genetic reports for clinicians Description: This session will be hosted by Professor Bodo Grimbacher who is with the Department for Immunodeficiencies at the University of Freiburg and is the current Chair of the ESID Genetics Working Party. During this session of the Grand Rounds, we will explore the topic of “Challenges of interpreting genetic reports for clinicians.” The schedule of presentations is as follows:1. An introductory talk by Andrés Caballero 5 min. and Adela Chirita-Emandi 5 min. on the basic nomenclature of human genetics and the importance of re-analyzing datasets regularly.2. Talk from Bodo Grimbacher: “The importance of careful phenotyping” 10 min.3. Talk from Roger Colobran: “Novel phenotypes of known genes” 10 min.4. Talk from Guilaine Boursier: “The problem of NEMO and NCF1” 10 min.5. Talk from […]

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Clinical Working Party

March 2023: Contemporary Management of DN-STAT3 / Job’s syndrome

admin
07/03/2023

Date: Monday, 18 September 2023, 16:00 CEST Topic: Challenges of interpreting genetic reports for clinicians Description: This session will be hosted by Professor Bodo Grimbacher who is with the Department for Immunodeficiencies at the University of Freiburg and is the current Chair of the ESID Genetics Working Party. During this session of the Grand Rounds, we will explore the topic of “Challenges of interpreting genetic reports for clinicians.” The schedule of presentations is as follows:1. An introductory talk by Andrés Caballero 5 min. and Adela Chirita-Emandi 5 min. on the basic nomenclature of human genetics and the importance of re-analyzing datasets regularly.2. Talk from Bodo Grimbacher: “The importance of careful phenotyping” 10 min.3. Talk from Roger Colobran: “Novel phenotypes of known genes” 10 min.4. Talk from Guilaine Boursier: “The problem of NEMO and NCF1” 10 min.5. Talk from […]

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Clinical Working Party

February 2023: Diagnosis and Management of Patients with Pathogenic Mutations in CTLA4 or LRBA

admin
06/02/2023

Date: Monday, 18 September 2023, 16:00 CEST Topic: Challenges of interpreting genetic reports for clinicians Description: This session will be hosted by Professor Bodo Grimbacher who is with the Department for Immunodeficiencies at the University of Freiburg and is the current Chair of the ESID Genetics Working Party. During this session of the Grand Rounds, we will explore the topic of “Challenges of interpreting genetic reports for clinicians.” The schedule of presentations is as follows:1. An introductory talk by Andrés Caballero 5 min. and Adela Chirita-Emandi 5 min. on the basic nomenclature of human genetics and the importance of re-analyzing datasets regularly.2. Talk from Bodo Grimbacher: “The importance of careful phenotyping” 10 min.3. Talk from Roger Colobran: “Novel phenotypes of known genes” 10 min.4. Talk from Guilaine Boursier: “The problem of NEMO and NCF1” 10 min.5. Talk from […]

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