International Neonatal Screening Day Event 29th of June 2022

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International Neonatal Screening Day Event  29th of June 2022

Dear Colleagues,

On behalf of Screen4Rare, we have the pleasure of inviting you to the International Neonatal Screening Day (INSD) Event, “Establishing Best Practices – how can newborn screening be supported in the European Union?,” hosted in collaboration with the  MEP Alliance for Rare Disease Newborn Screening (NBS).

The event will be taking place in hybrid format, both in the European Parliament as well as online, on Wednesday, 29th June, 15.00 to 17.00 CEST.

Should you be interested in participating, either in person or virtually, please do not hesitate to register by clicking  here. You can find the agenda and additional information here.

The International Neonatal Screening Day (INSD) was launched in 2021 to raise awareness of neonatal screening and the potential benefits it can provide worldwide.

This year, as part of the celebration,  Screen4Rare - a multi-stakeholder platform launched by the International Patient Organisation for Primary Immunodeficiencies (IPOPI), the International Society for Neonatal Screening (ISNS), and ESID - will co-organize this event with the MEP Alliance for Rare Disease Newborn Screening (NBS) to highlight the relevance of NBS within the EU and consider how to move forward for more equitable access.

We will share the latest updates from our ERN Expert Platform, consider the status of NBS in the EU and hear from members of our MEP Alliance about current EU actions.

We look forward to welcoming you to this important event.

ESID Administrative Office