Clinical Working Party
Clinical WP - Newsletter August 2018
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by Andrew Gennery
Clinical Working Party
The clinical guidelines writing remains ‘in progress’ – please contact me if you wish to be involved
The ‘Malignancy in PID’ position statement is well advanced, and dovetails nicely with the theme of the next Focus ESID meeting in Brussels in 2019.
Current projects:
- Consensus statement on diagnosis and management of GLILD in CVID (Klaus Warnatz: )
- Consensus statement on diagnosis and management of CGD (Siobhan Burns + Andy Gennery: )
- Malignancy in PID - workshop (with IEWP + iBMF) (Andy Gennery: )
- Complement Disorders (Stephen Jolles; [email protected])
A joint CWP/IEWP Thymic workshop will take place in London (London Heathrom T5) on September 14th 2018 – further details can be obtained from Roz Scott
(
) - registration is free, but places are limited so please contact Roz if you are interested.
Markus Seidel continues to lead a project on outcome of patients with LRBA deficiency – both those who have been transplanted and those who have not – contact him if you have data you wish to include:
The Clinical Working Party Steering Committee
- Professor Andy Gennery – UK (Chair)
- Professor Stephen Jolles – UK (Secretary)
- Professor Raffaele Badolato – Italy
- Professor Klaus Warnatz - Germany
- Dr. Fabian Hauck - Germany
- Professor Anna Sediva –Czech Republic
- Professor Carlo Agostini – Italy
- Dr. Despina Moshous - France
- Professor Ewa Bernatowska - Poland
- Professor Tadej Avcin - Slovenia
- Dr. Siobhan Burns – UK
- Professor Pere Soler Palacin - Spain
- Dr. Filomeen Haerynck – Belgium
- Professor Luigi Notarangelo – (CIS representative)
- Professor Antonio Condino – (LASID representative)
- Mrs Jose Drabwell – (IPOPI representative)
- Ms Carla Duff – (INGID representative)
How to participate
The clinical WP meets during the biennial ESID meetings. Any ESID member clinician can participate and propose trials to the Chair of the clinical WP to be placed on the ESID website. Additionally, we will be running stand alone focused meetings to further the aims of the CWP and ESID.