Registry

Studies

Information on studies using the ESID Database and the data access and publication guidelines.

Unclassified Antibody Deficiency study

Unclassified Antibody Deficiency study in the ESID Registry: already >2,000 level 1 + level 2 forms completed for the unPAD study

Primary selective IgM deficiency: clinical and laboratory features (SIMcal

Our ESID Registry study Primary selective IgM deficiency: clinical and laboratory features (SIMcal) is still recruiting. The study is coordinated by: Prof. Dr. Esther de Vries, the Netherlands.

Data access and Publication rules, Research Proposal Form

Information on studies using the ESID Database and the data access and publication guidelines.
Last updated on July 29, 2016.

APDS Registry

The first ESID Registry level 3 project.

Currently recruiting!

CGD Study

Long term prognosis of patients with chronic granulomatous disease treated with conventional treatment or stem cell transplantation: a comparative retrospective study.

unPAD Study

Unclassified Antibody Deficiency in the European Society for Immunodeficiencies (ESID) Registry.

Please note:

The possibility to document the extended Level 2 dataset will be offered from now on automatically by the system for all patients with a respective PID-Diagnosis.

Participation in the Study is possible by documenting the respective Level 2 Forms.

If you are unceartain at the moment about the participation you might want to choose the option 'ask me later' .

 

SIMcal Study

Primary selective IgM deficiency: clinical and laboratory features.

Now recruiting.

Only LEVEL 1 documentation required!

Ataxia-telangiectasia (A-T) Study

Retrospective analysis of ESID-Registry data.

Chest CT in antibody deficient patients

The Chest CT in Antibody Deficiency Group is an international and interdisciplinary group that works together to improve pulmonary diagnostics in patients with antibody deficiency syndrome.