ESID

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Application forms and documents

New centers should fill in the Agreement between the center and ESID and new users of the ESID registry the password application.
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User manual for the ESID Registry

A concise guide to the new ESID Registry!
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List of diseases and genes

This list gives an overview on the diseases in the Registry and available genes for each disease. Please, have also a look in the menu on the left at ESID...
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The 3 levels: datasets and driving questions

This section contains a description of the three Levels and (technical) documents on the ESID Registry; in particular, the complete Level 1 dataset with...
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ESID Questionnaires

This section provides questionnaires that can be applied to patients and physicians to collect the necessary data items for the new ESID Registry. The...
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Chairperson WP Registry (2022-2026)

Prof. Markus G. Seidel