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Studies
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Information on ongoing studies using the ESID Registry Database.
For completed studies please refer to the list of Registry publications.
If you want to propose a study to the ESID Registry, please use the following Research Proposal Form:
GLILD, (Extension of the data fields for ILD in PID in the ESID registry)
Extention to Level 1 for patients with ILD.
Currently under Revision (12/2023) by Study team.
Study on Hyper-immunoglobulin E syndrome (HIES) due to dominant-negative STAT3 mutations
Centres that have fully registered eligible patients in the ESID-registry, have already been contacted directly and asked for approval to use the documented data.
Data has been extracted from ESID-R and provided to the study team. Analysis pending (01/2024).
CHH-Study: Risk factors for mortality in cartilage-hair hypoplasia
Risk factors for mortality in cartilage-hair hypoplasia
Data has been extracted and provided to the study team. Analysis completed and manuscript submitted.
Manuscript accepted for publication as of 04/2024!
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