PID Care in Development
The PID Care in Development Working Party (PIDCD WP) was established at the 2006 ESID Meeting in Budapest, based on the success of the J Project in East-Europe effective since 2004. The major aim of the PIDCD WP is to improve PID patient care, professional collaboration, and patient group activity in regions with low number of registered PID patients, and possibly inappropriate diagnostic facilities and treatment measures.
With these aims in mind the PIDCD went through 4 very successful years under the lead of Laszlo Marodi. The elections for the next term took place in Istanbul during ESID Conference in October 2010, and Anna Sediva was appointed as a chair of this WP.
The main goal of WP remains the same. PIDCD concentrates on an effort to increase awareness and facilitate diagnosis and care about PID patients in countries with less accessible PID care. The activities of PIDCD would include continuing series of meetings in countries of interest. Further, the PIDCD WP would by all means try to facilitate equal access to information on PID and is ready to help with improving conditions and access for health care in PID diseases. This includes all aspects of this complex area, beginning with information distribution, patients registries, patient diagnosis and treatment, establishment of patient organizations and nurses groups, facilitate contacts with pharmaceutical companies and help with any other related issue.
In all aspects of its activities PIDCD would cooperate with all ESID bodies and ESID members, particularly with ESID Junior WP, ESID Educational WP, and the J Project Group.
ESID PIDCD WP welcomes everybody to join, to enlarge already formed and working WP and to contribute to its further progress.